Caring for a poorly or disabled child can feel overwhelming โ emotionally, physically, and financially. Whether you're just starting out on this journey or you've been navigating it for some time, you're not alone.
We've put together a list of trusted organisations and resources that offer practical advice, financial support, emotional guidance, and more. These charities and services exist to help families like yours โ with everything from claiming Disability Living Allowance (DLA) to finding a place to stay near the hospital, accessing specialist nurses, or getting grants for everyday essentials.
We hope the links below give you a strong starting point and offer a bit of comfort in knowing there is help available.
Together for Short Lives
Offers financial support and connects families to charities that can help fund equipment and other costs.
๐ togetherforshortlives.org.uk
Turn2Us
Helps people in financial hardship access benefits, grants, and support services.
๐ turn2us.org.uk
React (Rapid Effective Assistance for Children with Potentially Terminal illness)
Provides grants for children up to 18 years old with potentially terminal illnesses, covering a variety of needs.
๐ necuk.org.uk
Newlife Charity
Provides essential equipment such as specialist beds, wheelchairs, communication aids, and sensory equipment to disabled and terminally ill children.
๐ newlifecharity.co.uk
Sandcastle Trust
Offers grants for equipment and leisure activities to low-income families caring for a disabled child.
๐ sandcastletrust.org
Disability Grants Directory
An online directory listing various grants for disabled children and their families, covering areas like housing, holidays, education, and more.
๐ disability-grants.org
WellChild Grants
Provides grants to families for essential items and services to support the care of children with serious health needs.
๐ wellchild.org.uk
Buttle UK
Offers grants for children and young people in crisis, which can include funding for essential items like beds, appliances, and clothing.
๐ buttleuk.org
Household Support Fund (HSF)
A government scheme providing financial assistance for essential items such as white goods. Distributed by local councils, eligibility varies by area.
๐ gov.uk
GOV.UK โ Benefits and Financial Support for Families
Official government resource to check eligibility for various benefits and financial support.
๐ gov.uk
Rainbow Trust Children's Charity
Provides emotional and practical support to families from diagnosis through treatment and beyond, including sibling and grandparent support.
๐ rainbowtrust.org.uk
Bliss
Supports parents of premature or sick babies, offering guidance and information.
๐ bliss.org.uk
Roald Dahl's Marvellous Children's Charity
Provides specialist nurses to support seriously ill children and their families.
๐ roalddahlcharity.org
The Sick Children's Trust
Offers free 'Home from Home' accommodation near hospitals for families with sick children.
๐ sickchildrenstrust.org
SOFT UK
Provides information on charities that can help with accommodation and other support while your child is in hospital.
๐ soft.org.uk
The Blue Badge scheme allows easier parking access for children with disabilities or serious medical conditions.
The child has a permanent disability or health condition that makes walking difficult.
The child may need to be near a vehicle at all times due to dangerous medical episodes, equipment needs, or life-threatening conditions.
Severe autism
Cancer treatments needing fast hospital access
Congenital heart disease
Severe epilepsy or respiratory conditions
Complex mobility needs or use of large medical equipment
Apply online via:
๐ GOV.UK - Apply for a Blue Badge
Youโll need:
A recent photo of the child
Proof of address and identity
Medical evidence or a letter from a healthcare provider
Emphasize why being close to a vehicle is critical for safety or mobility.
Even if your child can walk, explain if they can't do so safely, reliably, or repeatedly.
DLA helps cover the extra costs of looking after a child under 16 who:
Needs more care or supervision than a child of the same age without a disability.
Has mobility difficulties.
Frequent supervision due to epilepsy
Medical routines requiring skilled attention
Severe learning difficulties or behavioural issues
Physical disabilities needing help with walking or transfers
Download or request a DLA form:
๐ Apply for DLA
Ring DWP to request a form: 0800 121 4600
Provide detailed examples of daily struggles, medical appointments, night-time care, etc.
Keep a diary of your childโs needs over several days.
Be honest and detailed โ donโt downplay needs.
Supporting letters from GPs, teachers, or therapists are helpful.
Contact โ For Families with Disabled Children
Great DLA help guides and helpline.
๐ contact.org.uk
Cerebra DLA Guide
Clear and in-depth guide for parents.
๐ cerebra.org.uk
The Motability Scheme helps people with disabilities โ including children โ lease a new, reliable car, wheelchair-accessible vehicle (WAV), scooter, or powered wheelchair using their mobility allowance.
Parents or guardians of a child (age 3 or older) can apply on their behalf if the child receives one of the following:
Higher Rate Mobility Component of Disability Living Allowance (DLA)
Enhanced Rate Mobility Component of Personal Independence Payment (PIP) (for older teens)
The Motability Scheme is all-inclusive, meaning the lease covers:
Insurance (for up to 3 named drivers)
Road tax
Breakdown assistance
Servicing and maintenance
Tyres and windscreens
Thereโs also the option for adaptations to suit your childโs needs, many of which are available at no extra cost.
Standard cars (many with no upfront payment)
Wheelchair accessible vehicles (WAVs)
Electric vehicles
Scooters and powered wheelchairs (for those eligible)
Check eligibility at the official site:
๐ motability.co.uk
Visit a local Motability dealer to choose a vehicle.
The lease is usually for 3 years (or 5 for WAVs).
If you're not sure if your child qualifies, the Motability team can help.
Grants may be available through Motability Foundation if you need a larger vehicle or adaptation and can't afford the advance payment.
The Disabled Facilities Grant (DFG) is a government grant to help make changes to a home so that a disabled child (or adult) can live more safely and comfortably. It's available across England, Wales, and Northern Ireland.
The DFG can help cover the cost of things like:
Installing a stairlift or hoist
Adding a downstairs bedroom or bathroom
Widening doors for wheelchair access
Installing ramps or grab rails
Improving lighting or heating for medical needs
Yes! Parents or guardians can apply on behalf of a disabled child under 18. Your local council may not means-test the income of families applying for a child (unlike adult applications), meaning many families qualify regardless of income.
Up to ยฃ30,000 in England
Up to ยฃ36,000 in Wales
Varies in Northern Ireland and Scotland
(Scotland has a different system โ see below)
It can take time โ from a few weeks to several months, especially if building work is involved. The sooner you apply, the better.
Scotland has a different system, but similar support is available through your local authorityโs Equipment and Adaptations Grant.